EU-IPFF ─ European Idiopathic Pulmonary Fibrosis & Related Disorders
[ www.eu-ipff.org ], Brussels:
▪ Member of the Executive Committee, [Since December 2020].
● Plataforma Saúde em Diálogo (Health Dialogue Platform Association)
[ www.plataformasaudeemdialogo.org ], Lisbon:
▪ President of the Members General Assembly, [Since December 2020].
● Prémio Maria José Nogueira Pinto (Maria José Nogueira Pinto Prize for Social
Responsability [ www.premiomariajosenogueirapinto.pt ], Lisbon:
▪ Member of the Jury, [Since July, 2012).
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● RESPIRA – Associação Portuguesa de Pessoas com DPOC e Outras Doenças
Respiratórias Crónicas (Portuguese Association of People with COPD and Other Chronic
Respiratory Diseases) [ http://www.respira.pt], Lisbon:
▪ President of the Directive Board. [Since January, 2020].
▪ Previously she was Vice-President, Treasurer, and Director. The áreas where she
worked (and works) are patient advocacy, fundraising, media relations, and
institutional affairs. [Since 2007].
● Several Portuguese and Foreign Advisory Boards related with Respiratory Health:
▪ Member, [Since 2007].
► MAIN PREVIOUS PROFESSIONAL AND VOLUNTARY ACTIVITIES
● IMI Project SPRINTT – Sarcopenia Physical Raility In Older People: multi-component
Treatment Strategies [ www.imi.europe.eu; www.mysprintt.eu ], Brussels:
▪ Member of the Dialogue Platform, as a patient, [From October 2014 to October,
2020].
● ELF – European Lung Foundation [www.europeanlung.org ], Sheffield, UK:
▪ Chair - [Mandate: from September 2017 to September 2020].
[ N. B. – According to the ELF by-laws each chair can be in functions only during ona
three-year mandate ].
● Commission for the Revision of the Principles of the Healthcare Law (Ministry of Health),
Lisbon:
▪ Member [February-September, 2018].
● Competitiveness Forum (A private think tank devoted to the study of the Portuguese
Economy), [ http://forumcompetitividade.org ], Lisbon:
▪ Associate Member, [Since 2011];
▪ Member of the Audit Committee, [December, 2011 – December, 2017].
● MOVA – Movimento dos Doentes pela Vacinação (Movement of Patients for Vacination)
[www.mova.pt], Lisbon:
▪ Co-founder member as a representative of RESPIRA, [April, 2017].
● In 2016 she was diagnosed with COPD (Chronic Obstructive Pulmonar Disease). After this
diagnosis all the new appoitments she got and activities she got envolved with, were and
are in a pro bono basis.
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● EFA – European Federation of Allergy and Airways Diseases Patient’s Associations
[www.efanet.org], Brussels:
▪ Member of the Board and of the COPD Working Group, [June, 2014 – January, 2015].
● EMA – European Medicines Agency [www.ema.europa.eu], London:
▪ EMA Expert, [January, 2013 – January, 2015].
● APIFARMA – Associação Portuguesa da Indústria Farmacêutica (The Portuguese
Pharmaceutical Trade Association) [www.apifarma.pt], Lisbon, [1987-2015]:
▪ Executive Director.
[ N. B. – In this capacity she was the representative to the European and International
institutions related with Pharmaceutical Industry, Labour, and Industry Relations,
and to the Portuguese institutions as well. Deserve special reference the interaction
with the European Parliament and the European Commission as well as the
participations in the Committees and Working Groups of EFPIA – European
Federation of Pharmaceutical Industries Associations and of IFPMA – International
Federation of Pharmaceutical Manufacturers & Associations. Within Apifarma she
was also Director of the Farmaceutical Industry Think Tank and Advisor to the
President for International Issues. ]
● CIP – Confederação da Indústria Portuguesa (The Portuguese Industry Confederation)
[ www.cip.org.pt ], Lisbon, [1985-1987]:
▪ Director-General.
● Several Companies within the Pharmaceutical Industry Sector, Lisbon, [1974-1984]:
▪ Manager, Executive Director.
► PUBLIC COMMUNICATIONS
● She is a frequent speaker in conferences, in Portugal and abroad, related with
Healthcare issues, mainly Pharmaceutical Industry, the role of Patient Associations,
and Chronic Respiratory Diseases.
► ACADEMIC QUALIFICATIONS, EXECUTIVE TRAINING AND FOREIGN LANGUAGES
● Economics degree with honours – [ ISCEF-Instituto Superior de Ciências Económicas e
Financeiras (School of Economics and Finance) of Universidade Técnica de Lisboa (Lisbon
Technical University) – 1972 ].
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● Post-graduation in Association Executive Management – [ University of Delaware,
Wilmington, DE, USA – 1990 ].
● Post-graduation in Business Administration – [ AESE Business School, Lisbon – 1995 ].
● Post-graduation in Social and Solidary Economics – [ ISCTE – University Institute of
Lisbon – 2009 ].
● Professional Executive Training: several courses and seminars in various institutions,
including at University of Navarra, and the Management Centre Europe (Brussels), in the
fields of Health, Pharmaceutic Industry, Business Administration and Strategy.
● Spoken languages: Portuguese, English, French, Spanish.